After Dale Atkinson decided to fight his diagnosis, his approach was research-first, AI-second. He used ChatGPT as a literature triage layer — feeding in his diagnosis and medical letters, asking "if you were in my shoes, where would you start?" and getting a reading list. He spent six weeks (two to three hours a day) building a custom GPT trained only on the self-curated corpus of papers he found relevant — explicitly instructed not to search the open web, required to cite at least five sources, required to explain its sourcing.
Read MoreDiana Ferro works at a major pediatric hospital in Italy, working on AI infrastructure, rare diseases, and — importantly — the International Alliance of Pediatric Centers on AI. Unlike the patient voices earlier in the Agentic Patient series, she sits on the other side of the consulting-room door. Her concerns are sharper, more specific, and more uncomfortable. She is not against patient AI use. She is watching what happens when desperate parents, teenagers in crisis, and sycophantic chatbots meet in a pediatric setting and she is trying to build the guardrails in real time.
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